This morning I spotted a magazine that read “Surprise Allergy” on the cover. Of course I grabbed it. First Magazine’s May 11, 2009 issue has a story on Non-Celiac Gluten Intolerance (NCGI). The article tells of a woman who had many Celiac symptoms – excessive fatigue, moodiness, GI problems, wheezing, acne, muscle pain and swollen joints – but tested negative to celiac. At 42 years of age, she was told by a doctor, “You’re just getting old-you need to learn to live with it!”
Thankfully, she visited a naturopathic doctor who put her on a gluten-free elimination diet, which led to the NCGI diagnosis. Within weeks of avoiding wheat, rye and barley, her energy came back and all symptoms disappeared. Surprise, surprise!
Ben, my 9 year-old tested negative to Celiac via blood test 5 years ago but was positive via biopsy. Confusing? Yes. At the time, my son was also allergic to all protein so I wasn’t thrilled about the idea of taking gluten away too. But, the most important test for us has been the gluten-free elimination diet. Once we took the gluten out of Ben’s diet, he improved greatly. He was able to go off of all of his prescribed medications and lost a persistent cough that had been hanging around for at least a year. He is also slowly gaining some proteins back into his diet. So, what is considered a true Celiac? Who determines it? How many of you consider yourselves true Celiacs and how many are considered NCGI? Does it matter? If gluten makes you feel bad, there is only one answer and that is NO GLUTEN! What do you think? How were you diagnosed? Please share your stories here.