Nightline Story on Food Allergies


Nightline Story on Food Allergies

Nightline Story on Food Allergies

I know the title of this blog is Gluten-Free Joy but my two sons also suffer from severe food allergies.  My oldest has Celiac Disease and is severely allergic to many foods, 35 at our last count.  He can’t eat most proteins, including dairy, beef, chicken, turkey, pork, all nuts and some legumes.  For years he was on a formula called Neocate that is meant for feeding tube patients.  Thankfully, he was able to drink it and avoided having a feeding tube.  So, food allergies are a very important topic in our world.


Last night ABC’s Nightline ran a story about a 5 year-old boy named Blake who has a very similar story as my oldest son.  Blake was only able to eat pork and white navy beans and was fed through a feeding tube for years.  His family recently discovered National Jewish Hospital, known for its pioneering work in food allergies, and thankfully located here in Denver, close to our home.  There, Blake’s food allergies were rediagnosed by a series of Food Challenges, meaning he was fed small amounts of the foods he and his family believed would make him sick.  

My 9 year-old has been seeing an allergist at National Jewish since he was 2 years-old and has undergone many Food Challenges there. He has passed some challenges and been o.k. to add that food into his diet.  But he has also passed some challenges only to become re-allergic to that food within weeks.  It has been a long and frustrating road but the older he gets, the more his food allergies seem to be improving.  There is hope!

Join me on Monday for my post on what to expect at a Food Challenge.

7 responses to “Nightline Story on Food Allergies

  1. Nice husband you have to direct us here via Twitter. If you’re not on jump in. Nice blog and lots of great info.

  2. We’ve got a challenge coming up on May 1st! It’s a biggie for us, so hopefully all goes well.

  3. Thanks for visiting Diane. I took a look at your blog too and look forward to trying some of your tips. And, yes I am very blessed to have such a nice and supportive husband! I am not on Twitter yet but plan to jump in there soon. ~Patty

  4. Jenn, please let me know how it goes. What will you be testing on? We have our annual challenge scheduled for June. Challenges always make me anxious. ~Patty

  5. Patty- Twitter is a lot of fun and a great way to meet people in the same wheelhouse. Also, I find and share lots of great info. I also find great blogs too. Let me know when you take flight! Thank you for the compliment on my blog. I have a lot of fun with it and I love meeting new people like you. Can’t wait to see what you share next. Keep up the good work.

  6. Pingback: What to Expect at a Food Challenge « Gluten Free Joy

  7. What You Should Know about Food Allergen Labeling

    How can you be sure that the foods you eat are free from your biggest allergens? Thanks to federal food allergen labeling laws, food manufacturing plants are required to step up to the plate and tell you in advance what their pre-packaged foods contain.

    Food Allergen Labeling Laws
    Food allergen labeling laws require that manufacturers list common allergens on their packaging to help consumers to steer clear of the ingredients that could trigger a reaction. That being said, there is a big catch: not everything is listed there. The Food Allergen Labeling and Consumer Protection Act of 2004 (FALCPA), which went into effect in January of 2006, only regulates the eight major allergic foods and any protein that is derived from these. This is because the majority of food allergies have their roots in their products. Nonetheless, if you have food allergies, there are still many unlisted foods that can also potentially make you sick.

    Eight Most Common Food Allergens
    Please review the following of allergens that the FALCPA requires be listed on packaging labels.

    Tree Nuts
    The Logistics of Food Allergen Labeling
    The current food allergen labeling law requires manufacturers to post this information in easy-to-read language and is applied to pre-packaged foods made in the United States, as well as those that are imported.

    Certain foods are immune from these regulations, however. This includes meat, poultry and egg products, although some manufacturers do list the allergen information voluntarily.

    Furthermore, how the allergens are listed can vary a little, either indicating the allergen directly in the ingredient list, or adding it immediately after.

    Other Things You Should Know
    Retail stores, food service establishments, and schools that package and label foods must also follow these food allergen-labeling standards. However, in places where you order food at the counter and have it individually wrapped, the law doesn’t require any labeling action.

    What This Means
    If you suffer from food allergies, the labeling laws can go a long way toward helping you understand what you’re consuming and helping you to make safe food choices. That being said, there’s still lots of room for questions and different interpretations. Be vigilant about checking the ingredients and ensuring the choices you make are safe.

    Be Your Own Advocate
    It’s essential that you take an active role in educating yourself about the things you eat and drink. Don’t be afraid to call manufacturers, ask questions about ingredients, and find out if there’s any danger of cross contamination. You’ll also need to be your own advocate when you eat in restaurants or take food to go that isn’t labeled. By making an effort to avoid your allergens, you can head off the risk of suffering from an allergic reaction. You should also make sure to always carry an epi-pen in case an emergency ever does happen.

    Find more great health info here!

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