I know the title of this blog is Gluten-Free Joy but my two sons also suffer from severe food allergies. My oldest has Celiac Disease and is severely allergic to many foods, 35 at our last count. He can’t eat most proteins, including dairy, beef, chicken, turkey, pork, all nuts and some legumes. For years he was on a formula called Neocate that is meant for feeding tube patients. Thankfully, he was able to drink it and avoided having a feeding tube. So, food allergies are a very important topic in our world.
Last night ABC’s Nightline ran a story about a 5 year-old boy named Blake who has a very similar story as my oldest son. Blake was only able to eat pork and white navy beans and was fed through a feeding tube for years. His family recently discovered National Jewish Hospital, known for its pioneering work in food allergies, and thankfully located here in Denver, close to our home. There, Blake’s food allergies were rediagnosed by a series of Food Challenges, meaning he was fed small amounts of the foods he and his family believed would make him sick.
My 9 year-old has been seeing an allergist at National Jewish since he was 2 years-old and has undergone many Food Challenges there. He has passed some challenges and been o.k. to add that food into his diet. But he has also passed some challenges only to become re-allergic to that food within weeks. It has been a long and frustrating road but the older he gets, the more his food allergies seem to be improving. There is hope!
Join me on Monday for my post on what to expect at a Food Challenge.